Funding planned for clinical trial that will share patient data in virtual real time

Dragon Master Foundation has announced plans to provide financial and collaborative support to a clinical trial that will make patient data available live in the cloud while the trial is underway.

The clinical trial, to be conducted by the Pacific Pediatric Neuro-Oncology Consortium (PNOC) in partnership with the Children’s Brain Tumor Tissue Consortium (CBTTC), will gather and analyse samples to be used for guidance in personalised treatments for patients. The aim will be to accelerate the process of testing new therapies tailored to the cellular pathways or mutations of tumours in children. Children with high grade gliomas (HGG), in particular, diffuse intrinsic pontine gliomas (DIPGs), will be included in the study population.

“We have shown it’s feasible to collect and analyse samples in a timely fashion, and because not one single tumour looked like another, we’ve demonstrated the need for individualised, precision medicine approaches,” explained Dr Sabine Mueller, PhD, MAS, the trial’s principal investigator.

President of Dragon Master Foundation, Amanda Haddock, said: “No longer will we have to rely on a one-size-fits-all medicine. These patients will get treatments customised to their specific mutations to the full extent of our medical knowledge. It’s truly precision medicine, and being enabled first for the most vulnerable of patients, those children with DIPG who so desperately need answers before their time runs out.”

The trial is set to launch in late summer this year and Dragon Master Foundation has already commenced efforts to raise $300,000 in funding.